Patients as Partners Europe

Welcome to Our New Website!

What to Expect

The 7th annual European Patients as Partners in Clinical Research conference offered an unparalleled opportunity to hear from pharma R&D and patient advocacy together on how patient involvement gets done to drive greater efficiencies in clinical research with better outcomes. The conference prioritized the patient voice for the R&D industry to learn how we can increase diverse representation, connect with a wide range of patient communities, make finding clinical research easier for patients and physicians and how we can give useful data back to patients.

Experts from Novartis, Sanofi, GSK, CSL Behring, Servier, Boehringer Ingelheim, Lundbeck, Alnylam Pharmaceuticals, Ipsen and more gathered with patient advocacy to address:

• The evolution of patient informed research
• Increasing diversity in clinical research Patient access to research through digital innovation
• Understanding barriers to community engagement in clinical research
• Turning patient insights into action
• Navigating patient engagement and compliance
• Mapping and how to measure patient engagement
• Regulatory requirements and patient engagement in drug development

Co-Chair
Deirdre BeVard
CSL

Co-Chair
Victoria DiBiaso
Sanofi

Co-Chair
Alfred Samuels
Patient Advocate

Co-Chair
Rosamund Round
Parexel

2023 Co-Chairs

2023 Keynote and Featured Speakers

Keynote
Marc Boutin
Novartis

Andres Blaedel
Lassen
Lundbeck

Jessica Braid
Roche

Marta Garcia Manrique
Servier

Annie Gilbert
Boehringer
Ingelheim Ltd

Oleksander Gorbenko
Ipsen Biopharm Limited

Laurence Bondoux
Sanofi

Tiffany Patrick
Alnylam Pharmaceuticals

Why now?

Covid has made the public more aware of clinical trials, patients want their voices heard, calls for diversity have grown louder, and regulators continue to raise the bar. As more and more companies embed the patient voice in every aspect of medicine development, leaders are interested in guidance and best practices to continue moving the needle.

How do we design patient-centered assessment tools that are fit-for-purpose for regulatory and payer use? What are the guidelines for collecting and reporting patient-experience data? How do we advance patient access to research through digital technology and enable diverse representation?

Patients First!

Thanks to patients, we are patients included and we have developed a true partnership in the development of our programs and have the following patient initiatives in place:

• Patient advisory groups to gain their input on the program agenda
• Patients have a wide choice of speaking opportunities
• Dedicated patient-led sessions, panels and roundtables
• “Ask the Patient” onsite program where patients share their clinical trial experience with
• Patients in clinical trials registration scholarship program covering 100% of the attendees registration fee