2024 Supporting Partners
The American Institutes for Research® (AIR) is a nonpartisan, not-for-profit organization that conducts behavioral and social science research and delivers technical assistance to solve some of the most urgent challenges in the U.S. and around the world. We do this work because when we look to the future, we see opportunities to close gaps that are rooted in injustice. At AIR, we know that equity begins with systems that work for everyone, so we lead with expertise, follow the evidence, and never stop drawing new connections to build a better, more equitable world. To learn more, please visit https://www.air.org/
AFTD’s mission is to improve the quality of life of people affected by FTD and drive research to a cure. We work every day to advance: Research. We promote and fund research toward diagnosis, treatment and a cure. Awareness. We stimulate greater public awareness and understanding. Support. We provide information and support to those directly impacted. Education. We promote and provide education for healthcare professionals. Advocacy. We advocate for research and appropriate, affordable services. To learn more, please visit https://www.theaftd.org/
The ASH Research Collaborative (ASH RC) is a non-profit organization established by the American Society of Hematology (ASH) in 2018 to improve the lives of people affected by blood diseases by fostering collaborative partnerships to accelerate progress in hematology. To learn more, please visit http://ashresearchcollaborative.org/
Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the life span, for the needs of individuals with autism and their families. We do this through advocacy and support; increasing understanding and acceptance of people with autism; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. To learn more, please visit http://autismspeaks.org/
The Breast Cancer Research Foundation is a nonprofit organization committed to achieving prevention and a cure for breast cancer. We provide critical funding for cancer research worldwide to fuel advances in tumor biology, genetics, prevention, treatment, metastasis and survivorship. To learn more, please visit bcrf.org
A Unique Resource for People with Cancer. Our mission is to empower, inform and engage patients and their care partners to navigate their cancer care and partner with their healthcare team to make informed decisions. To learn more, visit https://cancer101.org/
The Center for Information and Study on Clinical Research Participation (CISCRP) was founded in 2003, and is a nonprofit organization dedicated to engaging the public and patients as partners in the clinical research process. As part of its mission, CISCRP provides accessible, relevant, high quality educational resources, programs and services that are designed to assist clinical research stakeholders in understanding public and patient attitudes and experiences in research, improve volunteer participation experiences and satisfaction, as well as promote engagement and partnership between clinical research professionals, patients, and the public. Visit www.ciscrp.org
Clinical Trials For All is a nonprofit educational initiative to inform the public about clinical research with the goal of making patient participation diverse, equitable, and widespread. Learn more at https://www.clinicaltrialsforall.org/
Digital Medicine Society (DiMe) is the first professional organization for experts from all disciplines comprising the diverse field of digital medicine. Together, we drive scientific progress and broad acceptance of digital medicine to enhance public health. DiMe exists to advance the safe, effective, equitable, and ethical use of digital medicine to optimize human health. For more information, please visit: www.dimesociety.org
The mission of the Gorlin Syndrome Alliance is to thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by Gorlin syndrome. To learn more, please visit www.gorlinsyndrome.org
It is the mission of the Fabry Support & Information Group (FSIG) to raise awareness of Fabry disease and its symptoms, to advocate for community needs and to lead the fight for the most effective treatment possible and eventually a cure. FSIG provides a link for the Fabry community to information, each other, the medical community, researchers, the pharmaceutical industry and regulatory authorities. FSIG strives to support affected families and individuals lead fuller lives. To learn more, please visit fabry.org
Greater Gift started in 2010 with a simple idea: celebrate the patients in clinical trials and the research professionals who support them in order to reinforce the impact of their participation in research. Our mission has grown through our celebration and community outreach programs to increase awareness of clinical research, especially among underrepresented communities. Greater Gift works to ensure all ethnic, racial, and marginalized populations are represented equally in research, so that medicines, treatments, and medical devices are effective for everyone. To learn more, please visit http://greatergift.org/
.png)
Our mission is to improve the lives of people impacted by hypoPARAthyroidism through education, support, research, and advocacy. We are here to raise awareness of HypoPARAthyroidism and to bring change to the lives of those affected. With your help we can make a difference. To learn more, please visit https://hypopara.org/
Our mission is to empower patients of color with the knowledge and trust to pursue clinical trials that can save or extend their lives. We envision a world where communities of color receive the best and most advanced healthcare available, allowing them to live full, healthy lives. To learn more, visit karensclub.org
At Lazarex Cancer Foundation, we strive to improve cancer health outcomes, FDA cancer clinical trial diversity and enrollment, and patient access to care by providing assistance with clinical trial navigation, reimbursing trial related travel costs, and partnering with at-risk communities to mobilize resources. To learn more, please visit https://lazarex.org/
Lighthouse Guild International is the leading not-for-profit profit providing programs and services to people who are blind and visually impaired. We care for over 5000 people who are visually impaired yearly, with patients and clients across the U.S. and internationally. With an emphasis on computer based assistive technology, we provide exceptional services that inspire people who are visually impaired to attain their goals. To learn more, please visit www.lighthouseguild.org
LUNGevity is changing outcomes for people with lung cancer through research, education, and support. We are dedicated to funding scientific research because the link between research spending and improved survival is clear. Our strategic investment in both early detection and therapeutics will help people live better with lung cancer and dramatically improve on the current 19% five-year survival rate. LUNGevity initiatives position us as thought leaders in the lung cancer advocacy community, providing programs and driving change for those with lung cancer today and in the future. While we fund primary research, we also conduct patient-focused research to better understand their unmet needs and convene multi-stakeholder meetings to streamline the research process and accelerate progress to patients. To learn more, please visit https://www.lungevity.org/
The Lupus Research Alliance is the largest nongovernmental, nonprofit funder of lupus research worldwide. The organization aims to transform treatment while advancing toward a cure by funding the most innovative lupus research; fostering diverse scientific talent; stimulating collaborations; and driving discovery toward better diagnostics, improved treatments and, ultimately, a cure for lupus. Because the Lupus Research Alliance’s Board of Directors funds all administrative and fundraising costs, 100% of all donations goes to support lupus research programs. To learn more, visit https://www.lupusresearch.org/
MDIC’s mission is to leverage its unique position as the only public-private partnership of its kind to transform health care into human care. Collaborating with our partners to advance science, we enable transformational medical technology to shape the world we want to live in and make that world possible by shortening the path from innovation to safety to access. To learn more, please visit https://mdic.org/
The Melanoma Research Alliance (MRA) is the largest non-profit funder of melanoma research. Since its founding in 2007, MRA has committed $131 million in funding to advance our understanding of this disease. MRA funds projects in the areas of prevention, diagnosis, and treatment, with the majority of funding allocated for melanoma treatment. The mission of the Melanoma Research Alliance (MRA) is to end suffering and death due to melanoma by collaborating with all stakeholders to accelerate powerful research, advance cures for all patients, and prevent more melanomas. For more information, visit: www.curemelanoma.org
The Melanoma Research Foundation (MRF) is the largest independent organization devoted to melanoma. Committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, the MRF also educates patients and physicians about prevention, diagnosis and the treatment of melanoma. The MRF is an active advocate for the melanoma community, helping to raise awareness of this disease and the need for a cure. The MRF’s website is the premier source for melanoma information seekers. To learn more, please visit http://melanoma.org/
The National Minority Quality Forum is a research and educational organization dedicated to ensuring that high-risk racial and ethnic populations and communities receive optimal health care. This nonprofit, nonpartisan organization integrates data and expertise in support of initiatives to eliminate health disparities. To learn more, visit https://www.nmqf.org/
The National LGBT Cancer Network works to improve the lives of LGBT cancer survivors and those at risk by EDUCATING the LGBT community about our increased cancer risks and the importance of screening and early detection; TRAINING health care providers to offer more culturally-competent, safe and welcoming care; and ADVOCATING for LGBT survivors in mainstream cancer organizations, the media and research. To learn more, please visit http://cancer-network.org/
The PAN Foundation is an independent, national 501 (c)(3) organization dedicated to helping federally and commercially insured people living with life-threatening, chronic and rare diseases with the out-of-pocket costs for their prescribed medications. Partnering with generous donors, healthcare providers and pharmacies, we provide the underinsured population access to the healthcare treatments they need to best manage their conditions and focus on improving their quality of life. To learn more, please visit https://www.panfoundation.org/
The Parkinson’s Foundation makes life better for people with Parkinson’s disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. To learn more, visit www.parkinson.org
We envision a future in which patients and their care partners are routinely engaged by drug companies, regulators and payers for their expertise throughout the development and assessment of every new medicine. The Patients’ Academy for Research Advocacy is helping patients and care partners get ready to engage in research as full partners whose unique experience can advance science and medicine. To learn more, please visit https://www.patients-academy.org/
Since 1991, the Pediatric Brain Tumor Foundation’s family support, research funding, and advocacy have led the way in ending the childhood cancer community’s biggest crisis: pediatric brain tumors. Dedicated wholly to addressing this rare but devastating disease and guided by the experiences of patients, survivors, their parents, and siblings, we are the only organization to meet families’ needs along every step of their cancer journey. The largest patient advocacy funder of pediatric brain tumor research, we also fund and advocate for innovative projects that lead to vital discoveries, new clinical trials, and better treatments – all bringing us closer to a cure. We’re able to do that because of people and partners committed to supporting families and ending childhood brain cancer. To learn more, please visit https://curethekids.org/
POP! –Pissed Off Patients is a growing community of patients living with rare and/or chronic illnesses who also identify as living with Medical PTSD brought on by Medical Trauma. We host biweekly discussions on a range of topics related to Medical PTSD, such as trusting friends and family, medical gaslighting, validation of the struggle of illness, etc. To learn more, please visit http://popmedicalptsd.org/
Our mission is to amplify voices & experiences of all Black people living with rare diseases through advocacy initiatives, education and support. To learn more, please visit https://www.facebook.com/rareandblack
The South Asian community living with inflammatory bowel diseases (Crohn’s disease or ulcerative colitis) faces significant stigma and psychosocial barriers to treatment and surgery. Our mission at South Asian IBD Alliance (SAIA) is to come together as patients and multidisciplinary clinicians (from South Asia and the diaspora) to create resources, research and education for IBD patients and healthcare providers of South Asian origin to minimize disparities, dispel stigma, promote early diagnosis and improve access to treatment. To learn more, visit www.southasianibd.org
Tigerlily Foundation aims to educate and advocate to empower, and support young women, before, during and after breast cancer. Through our programs, we seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care. To learn more, visit https://www.tigerlilyfoundation.org/
Touch, The Black Breast Cancer Alliance drives the collaborative efforts of patients, survivors, advocates, advocacy organizations, health care professionals, researchers and pharmaceutical companies to work collectively, with accountability, towards the common goal of eradicating Black Breast Cancer. To learn more, please visit www.touchbbca.org
Media Partner
_twitter.jpeg){kind=logo}
The life sciences sector is witnessing unprecedented levels of innovation and investment, while the health care industry as a whole is in the midst of a sea change. If you aren’t a full-time analyst, how can you keep up and find the key information you need to make the right decisions for your business? That’s where we come in. Big4Bio is the premier aggregator of financial, clinical, and business news on the life sciences sector. Our free, daily emails give you easy-to-scan headlines on key developments and links to content gleaned from dozens of credible industry sources. We produce individual summaries for the four most significant life sciences markets in the country: San Francisco, Boston, San Diego, and Philadelphia. To learn more, visit big4bio.com
2024 Sponsors
